Lorelai update! 🐝 She is slowly improving. In the pic, she is getting her typical Promedica spa treatment 😆She is still intubated and heavily sedated but she does open her eyes from time to time. She had a cpap trial again yesterday and did much better than the first time. The goal has been to get her off of the vent so she can be extubated. After talking to her neurosurgeon, we have decided that replacing the shunt isn't the best option for our daughter. The risk of recurring infection isn't a risk we are willing to take. So, she will be transferred to Nationwide Childrens to have a choroid plexus ablation which will eliminate the need for a shunt. The surgery is long and extensive but it's really the best option. Her neurosurgeon figured Nationwide would want to wait until she was better and off the vent but they said no, they are okay taking her on in her condition. (They will have to intubate her for surgery anyway so might as well leave it in) Therefore, it sounds like coming within a few days she will be transferred and having another brain surgery.
Thank you for praying with us.